sickle cell disease
Sickle Cell Association, Inc.
177 State Street 3rd floor
United Way Agency of Eastern Fairfield County
Sickle Cell Disease Association of America
Sickle Cell Disease is a hereditary,
chronic disease of the red blood cells that is
characterized by painful episodes, infection,
organ damage, anemia joint degeneration, strokes
and many other serious health problems. There is
no cure. One in ten people of African descent
carries the genetic trait for sickle cell
disease. One in 400 individuals of African
descent carry the disease. One in 25 Hispanics
carry the genetic trait and one in 1000 has the
disease. Sickle cell disease is also found among
people whose ancestors come from Greece, Italy,
Turkey, Saudi Arabia, the Caribbean, Central
America, Northern South America, India and
Southern Regional Sickle Cell Association (SRSCA)
The purpose of this Organization is to provide
education, screening, counseling and support
services to persons affected with Sickle Cell
Disease and the trait. This purpose is expanded
to include families, communities, which ensures a network of partners dedicated to promoting a
healthy life style for patients with sickle cell
We are a member of the United Way Agency of
Eastern Fairfield County, and the National Sickle
Cell Disease Association of America. Volunteers
are always welcomed and needed. Call and get
information on how you can become a member or
volunteer of the SRSCA.
In honor of September being National Sickle Cell
Awareness month, the SRSCA, celebrates by having
an annual Walk-a-thon, Co-sponsored by the
Connecticut Chapter of the Delaware State
University Alumna Association. Walkers and
sponsors are needed.
SATURDAY , SEPTEMBER 22, 2001, WILL BE OUR 10TH ANNUAL WALK-A-THON AND
CELEBRATION, STARTING AT 8:30 AM FOR REGISTRATION, LEAVING 9:00 AM FROM
SACRED HEART UNIVERSITY, PARK AVENUE, BRIDGEPORT ENDING AT SEASIDE PARK'S
BANDSTAND, BRIDGEPORT. AT THE END FOR THOSE NOT WALKING THERE WILL BE A
SHOPPING MALL OF VENDORS, STARTING AT 10:00 AM . ENTERTAINMENT AND GREETING
THE WALKERS WILL FOLLOW WHEN THE WALKERS ARRIVE.
PREREGISTRATION $5.00 DAY OF EVENT $7.00. EMAIL OR CALL FOR SPONSORSHIP
FORMS. HELP US MAKE THIS OUR LARGEST EVENT. THE PROCEEDS FROM THIS EVENT
SUPPORTS OUR FAMILIES AND PROGRAMS.
Dr. Lenette Benjamin, is the Chief Medical
Officer for the National Sickle Cell Disease
Association of America and Director of Sickle
Cell Center at Montefiore Hospital, Bronx, New
York. She attended our annual Walk-a-thon
September 25, 1999, and asserted that next year
the plight should take on a national project to
get everyone throughout the entire nation to walk
at the same time in "The National Sickle Cell
Newborn Sickle Cell Screening
As of March 1, 1989 in the state of Connecticut
all hospitals began participating in Universal
Newborn testing of sickle cell anemia and its
variants, using the tow week follow up P.K.U.
sample, therefore no additional testing is
necessary. For additional information you may
contact the Southern Regional Sickle Cell
Association or your local physician.
The Southern Regional Sickle Cell Association
provides information and support from the Greater Bridgeport Connecticut Region. The SRSCA
addresses these goals in a variety of ways. It
sponsors fundraising activities in the
communities that help to increase public
awareness to the problem of the sickle cell
diseases and raise revenues to support a free
service for patients and families with the
disease. It participates in health fairs and
testing for sickle cell traits.
We are available for speaking engagements
This photo was taken after The Southern Regional Sickle Cell's 1st. Annual
Celebrity Basketball game. In the photo is Sandra Worrell, Board Chair for
the Association, Isaac Hayes, and Delores Williams-Edwards, Executive
Director. The Southern Regional Sickle Cell All-stars played against the
Isaac Hayes Crusaders on February 3, 2001, in Bridgeport, Connecticut .
Isaac Hayes attended to watch his team play our team. After the game we
gave a reception in his honor. We thank Isaac Hayes and his foundation for
all their support.
Lillian Riddick, PHD
S.C.D.A.A. Board of Directors
The Southern Regional Sickle Cell Association
Nominated Poster Children for 2001-2002
Ms. Deanna Holt 10 years old, and Mr. Steven Green 6 years old
of Bridgeport, CT.
@ NEWS CHANNEL 8
Keith Knountz, Jeff Fox, and the poster children
Mr. Keith Kountz News Anchor and the Honorary Chair of our 10th
Annual Walk-a-thon September 22, 2001
Isaac Hayes and DeAnna
DeAnna Holt, her Father, Mother and Aunt
Youths Speak Out - Bridging the Gap
Youth Speak Out - Bridging the Gap
Contact: Delores Williams-Edwards
Southern Regional Sickle Cell Association, Inc.
Bridgeport – On Saturday, May 5, 4:30 p.m., Monday, May 7,7 p.m. and
Wednesday, May 9, 7:30 p.m. Cablevision ( channel 72) andSNET, Americast
(Channel 17) will rebroadcast the Southern Regional Sickle Cell
Association’s SCOPE Project ( Sickle Cell Outreach Prevention
Education) . This taping was produced by the Southern Regional Sickle Cell
Association , directed by Soundview Community Media and moderated by a group
of students from the Warren Harding High School Health Magnet program who are
trained peer educators.
The broadcast will feature a panel discussion by fifteen student, Hertz
Nazaire, Artist/ and a sickle cell patient, plus Dr. Garth Oliver of Milford
Health Practice who present information about sickle celldisease, and answer
questions from individuals who called in during the live broadcast.
Highlights of the program are the participants who speak out about the pain
and fear experienced by those who have the disease.
PBS Documentary on Chronic Pain:
Features Sickle Cell Disease
Local Bridgeport Artist:
Hertz Nazaire is interviewed about his Pain.
Click Here to view > Images
check your local PBS Listings for Air Times
state organizations list-
SCD in the News
Find The Sickle Cell Community Online
[ Message Boards - BBS - Forums ]
[ Sickle Cell Chat ]
link to S.C.A.R.E. ( Bronx, NY )
[ defiers.com ]
Local community links:
COLEMAN TOWERS TENANTS ASSOCIATION INC. - OWNER
RENAISSANCE CO-OPS/COMPUTER LEARNING CENTER
Knowledge is just a click
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